Life in the Fast Lane
Not that anyone is reading after my long no-post period, but yeah, I am, once again, still alive. I just started school again Monday, so things have been hectic. I'll get back to regular posting ASAP...
...or at least, I will try. Just a short "yeah, I'm here" and a little Destiny update as well. Last week when I visited her and did music therapy, she identified letters for me, was able to point to "yes/no" cards to indicate she remembered a song or not, was able to move a ladybug to the "Ladybug song" in recollection of what to do (i.e. "ladybug lands on my wrist") and was able to recall the next step (then "ladybud lands on my elbow"). I heard her REALLY laugh with her voice (thanks to mom and a Garfield stuffed toy) which was priceless.
So she's still progressing, albeit a little slower than we'd like, and most definitely than SHE would like. I won't take any of it for granted and I know her parents won't either! A final note...all of her motor region was destroyed by the fluid on her brain, so she will have to relearn all of her moments, gross and fine. She is pretty much as mobile as a child...
...and is therefore not speaking because she hasn't figured out how to move her tongue. Hopefully she will then begin to babble and get it going again, cause I know the words are in there as indicated by what she is able to recognize.
So that's the latest. I hope SOMEONE out there is still reading...
...or at least, I will try. Just a short "yeah, I'm here" and a little Destiny update as well. Last week when I visited her and did music therapy, she identified letters for me, was able to point to "yes/no" cards to indicate she remembered a song or not, was able to move a ladybug to the "Ladybug song" in recollection of what to do (i.e. "ladybug lands on my wrist") and was able to recall the next step (then "ladybud lands on my elbow"). I heard her REALLY laugh with her voice (thanks to mom and a Garfield stuffed toy) which was priceless.
So she's still progressing, albeit a little slower than we'd like, and most definitely than SHE would like. I won't take any of it for granted and I know her parents won't either! A final note...all of her motor region was destroyed by the fluid on her brain, so she will have to relearn all of her moments, gross and fine. She is pretty much as mobile as a child...
...and is therefore not speaking because she hasn't figured out how to move her tongue. Hopefully she will then begin to babble and get it going again, cause I know the words are in there as indicated by what she is able to recognize.
So that's the latest. I hope SOMEONE out there is still reading...
posted by StargazerGirl at 2:22 AM
1 Comments:
It must be very difficult to not be able to speak. Now I fully expect the "Har har, Kate's saying that because she talks all the time" comments (and they're largely true). But I'm being serious about how hard it must be.
I mean, as an adult, if I were somehow muted, I'd write. A lot. I'd write about how it hurt, how scared I was, how I didn't understand why this was happening to me.
Now I imagine being a child, being largely unable to write, especially long sentences about my feelings. I think it'd hurt me DOUBLE, because I'd be unable to constructively work through my pain and fear.
I know she probably doesn't experience that pain and fear on the same level an adult would (children are amazingly buoyant), but I'm sure she still has a lot of frustration welling up inside her with no way to let it out.
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